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July 15th, 2007

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05:42 pm - Questions

New member here, with a specific purpose for joining.

I have Spinal Muscular Atrophy. I'm 25, gay, jobless, not currently going to college, and living with my sister. The last three I hope to change. The problem with the first two I wish to change is that I'm totally clueless about what my options are. The last one, not so clueless but at the same time I could use some advice or just hear some experiences on independent living and learn from those.

OK, so I know there's vocational rehab for the job, and possibly for college. The living situation isn't so bad, but I've always wanted to live on my own and besides that, there are goals my sister has that she can't achieve because she's taking care of me. My major problem is trying to figure out what I want to do in life.

Anyway, so I want to go back to college. But I'm limited to what I can do. My mind has never been the problem, my physical limitations have been. However, my main problem is that I can't choose what I want to do. So a friend suggested I ask some people with my condition what they went for and see if anything appeals to me. So, anyone here with MD or any other disability, what career choice did you go for, and why?

Also, any advice on scholarships and such? Any advice on moving out and living independently/semi-independently? Any advice on how to find a good personal assistant that won't do a half-assed job? Any advice and shared experiences are very appreciated!
Current Mood: contemplativecontemplative
Current Music: The End Of Medicine - The New Pornographers

(8 comments | Leave a comment)


[User Picture]
Date:July 16th, 2007 01:05 am (UTC)
Hi there! welcome!

I dated a guy for about two months who was a wheelchair user. He lived at an adaptive apartment complex and had regular attendants come and visit. I don't know how he signed up for them, but I know one that he saw on a regular basis was an attendant for multiple people in the complex. I bet if you found an adaptive apartment, you would also be able to find attendants through your neighbors.

As far as college, I think its good to focus on what you want to do and then go from there. Scholarships are great for people like us! milk your disability for all it's worth! :-) Colleges love to look like they love diverse people :) I have never applied for a scholarship (my dad works at the school i went to so i got a discount that way) so i cant help you there. I think the internet is a good research tool for stuff like that.

Good Luck!

PS I love the new porno's
[User Picture]
Date:July 16th, 2007 03:29 am (UTC)
Yea, the New Porno's rock :C)

Thanks for the advice!
[User Picture]
Date:July 16th, 2007 02:59 am (UTC)
Hi... I can't really answer your questions (I'm 22, live with my mother, attend college on student loans, and am also jobless), but I looked at your user pics and I think I've met you before. Did you ever go to MDA camp in St. Louis? Check out my MySpace to see if you know me.
[User Picture]
Date:July 16th, 2007 03:34 am (UTC)
I remember you. Yep, until 2002 or 2003 I think. I moved to California with the parents, then to Indiana when my dad got a new job. I moved back here (Illinois) a year ago.
[User Picture]
Date:July 16th, 2007 03:41 am (UTC)
Hi! So, am I outing my geekiness by offering a very simple solution to the first thing? Give yourself 12 months, by which time you will be 26 and no longer the troublesome 25.

Or did you mean the whole gay thing? That's not anything to worry over.

I'm 31 with SMA. I've worked for big oil and a publishing house. I currently live with the parentals because publishing pays squat. I work from home right now due to cutbacks but have worked in offices for years.

Ok, here's the thing. You can do two things.. Well, more than 2, but the top two options...

1. Do what you enjoy. I chose this. I dearly love my job. But dreams rarely pay well.

2. Study business. The world always needs accountants. Not as sexy as some positions, but job security really helps.
[User Picture]
Date:July 16th, 2007 05:14 pm (UTC)
Thanks for the advice. Hehe I'm turning 26 on the 24th :C)
[User Picture]
Date:July 16th, 2007 06:40 pm (UTC)
Happy early birthday then!

Um, one other suggestion would be to not kill yourself trying to meet expectations no living soul could meet. If you must push that hard, consider finding a therapist. No, I'm not saying you're crazy. But I know I'm not the only one here who hit an emotional wall trying to deal with work, hiring attendants, commuting from hell, trying to move out, etc...
[User Picture]
Date:July 17th, 2007 07:18 pm (UTC)
Thanks again.

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